Monday, April 20, 2009
On Evangelism
Why?
It's uncomfortable.
It's easy to say it's for "other" people to do.
I don't want to be "weird" like America perceives the church to be.
I don't want to make someone else uncomfortable.
I don't know what my story is exactly.
What??
To write it is a little shameful and shocking. What do you think of when you hear the word Evangelism?
Exactly.
I picture loud and in-your-face tv preachers, door-to-door knockers, or people who give a "track" for a tip at a restaurant, on the one side. On the other side I picture the gentle loving missionaries in other countries who are generally warmly received with their message of hope, love, and a faith in a relational God: Jesus.
Now me: Hmmm...American, busy, too busy to talk to my neighbors much, too shy to talk to a stranger in a store, too judgmental of the churches ways of doing things poorly, too insecure in who I am as a Believer.
This isn't a condemnation note. I've just been really inspired by some of the sermons that have been given at my church these last 3 weeks. I love my church. My pastor is really good at not just teaching, but motivating people to get out of their comfy seats and do something to share Jesus. Why? Because we all need Him.
I'd love for you to hear these messages too. Not that I need to make any disclaimers, but they aren't weird, or loud, or abrasive, or condeming. They aren't messages that you'll hear in most churches. On Easter Sunday, 3 different testimonies of God's saving power were given, and they weren't the typical kind you're used to hearing (if you're used to hearing any). They are refreshing. http://www.bctulsa.com/uploads/2009.html You can do podcasts, or go into MP3 downloads for the archives of the messages. April 5, 12, 19 are the dates. This being Monday, I doubt yesterday's message is there yet. But, so worth it if it is. We had a guest speaker: Adam Cox (I think), the head of 24-7 prayer in Kansas City. (Go to http://24-7prayer.com/ if you're interested in that movement. Our church is a big part of it as well.) He's younger than us, and not a life-long church-goer. I kind of thought I was watching a youth pastor at first, but his message was so sweet and meaningful, and a shock to my expectations.
So, I'm still thinking on what this means for me.
I definitely need to think through my story. I love Jesus. I do. We couldn't have made it through the last 6 months, or even the last couple of years with any sense of hope or strength without Him. There's a story in there, I just need words to go with it.
Be encouraged. You have a story too. I'd love to hear it.
Addendum: A friend of mine from church summed it up much more eloquently. It's a good/inspiring read. http://geidlbots.blogspot.com/2009/04/witness.html
Tuesday, April 7, 2009
Confessions
Saturday, March 21, 2009
Banana Mini-Chip Bread
Ingredients:
1/4 c. unsalted butter, softened
1/4 c. natural unsweetened applesauce
1/4 c. veg. oil
1/4 c. sour cream
3/4 c. white sugar
1 c. Splenda Granulated
5 bananas (mashed well before adding).
3 eggs
2 tsp. baking soda
1 tsp. baking powder
1 tsp. salt
2 tsp. vanilla extract
1 1/4 c. Whole Wheat flour
1 c. all-purpose flour
1/4 c. ground flax seeds
1 c. mini-chips (semi-sweet)
1/2 c. chopped walnuts
Directions:
1) Preheat oven to 350, and spray 3 bread pans with "cooking spray with flour" (Baker's Joy or Crisco)
2) Mix butter, applesauce, sour cream and oil well. Add sugars and beat for a minute or two. Add eggs, bananas, and vanilla. Then add flours and baking soda, powder and salt. Don't over-mix at this point. Stir in mini-chips and nuts. Pour in even amounts into the pans and bake for 35-45 minutes until golden and toothpick comes out clean.
Mmmmm....
Saturday, March 14, 2009
Did I Mention?
I try not to over-analyze every number, but when I'm the one who's in charge of keeping her from suffering from the side-effects of diabetes, I do feel responsible when her numbers are off.
I talked to a couple people from the clinic this week. They feel her current weird numbers are two things: One, she's going through a growth spurt, which can throw things off. Two, she's starting to show more rebounding.
What in the world does that mean, we all wonder???
Well, apparently as the pancreas is closer to fully calling it quits, it stops sending the right messages, and whenever her sugar drops below 70 the liver starts spitting out sugar. Since it's not getting messages from the pancreas, it doesn't know when to stop. Thus her numbers go from 45 to 465 in a matter of an hour or two. It's good to have an explanation and not feel so so much guilt. But, I can't help but wonder what this means. Will she always vacillate wildly like this? That feels so awful in her body. And it's awful to observe. I feel powerless.
Tear, tear...
Sniff, sniff...
Sigh.
She and I have had some sweet moments lately though. Lots of snuggles when we're trying to get her to come up or down. She has a beautiful soul, that girl.
I recently had one of those really bad days where the sad feelings were taking over. I did one of those things we probably all have done in our lifetimes, and questioned whether God really existed. Sorry, I hope that doesn't sound ridiculous to some. I said, "I don't mean to test You, but I really need to know that you care about my situation. I need you to give me a scripture that spells it out for me."
I laughed at myself afterword. This is why: I felt led to turn to Psalms.
First verse I see in Psalms:
Why are you downcast, O my soul? Why so disturbed within me? Put your hope in God, for I will yet praise him my Savior and my God.
Psalm 42:5
Thursday, March 12, 2009
Attitude Adjustment Needed, or Maybe Just Chocolate
Wednesday, March 11, 2009
Highs and Lows
Today it's not as much the emotional highs and lows as it is the physical ones she experiences. It's been a weird day. For the last week or so she's had a lot of numbers over 200 and 300. I started feeling like I wasn't paying enough attention and wasn't giving her enough insulin. So this week has been better, but today she went low (below 70) like 5 times! Every time requires extra carbs to bring her back up, and sometimes she'd continue to go lower. It's so dang confusing. Sometimes I give her like 10 carbs to correct a low and she'll shoot up over 200. Tonight I gave her 15 carbs and she dropped 20 more points. So, I had to give her 20 more carbs, and it brought her up to 115, which is high enough to send her to bed. However, not high enough for us to sleep all night without worrying. So, we get to set an alarm, or just go to bed really late on a night when we're already totally exhausted, and test her blood sugar again. That's never fun, as she usually can't wake up enough to put up with it and gets really angry, screams, cries, runs away from us, etc. Then when you ask her about it in the morning, she'll say, "Oh, you tested me last night?"
Are you serious? I'm thinking...
Most of the time we go through our days and nights with a lot of peace. Then there are days like today when we're reminded how unpredictable and very serious this disease is for her.
Yesterday I went to a coffee-talk with other moms of diabetics. There is also a young woman there who has Type I and works for JDRF. We had just gone to our first pump class, so I had a lot of questions for them about the different ones and which ones they were on. They also helped me feel like Sophia's sometimes irradic behavior is very normal. I met another mom with a kindergartener who said her daughter does very similar things. We talked about getting the girls together to play. I think it would do Sophie a world of good to meet another girl her age, plus this girl has a pump. So she could see what it's like.
The moms also helped me get a better understanding of how truly awful she feels a good portion of the time still. The woman with Type 1 gave some great descriptors for how it feels. Before her diagnosis, she was hanging out in the highs all of the time, so she was tired, and thirsty, and cranky. But now she vascilates between the highs and lows and feels those swings, and feels completely yucky on either end. They said that at as high as 250 (which she's often at) her blood is as thick as corn syrup and it feels like walking in sand. At the lows (below 70) it feels like that shaky, hungry, irrational feeling we get, except MUCH worse and more intense, often with sweating. Darn. Who wants to feel that way? It really stinks to think of her as feeling that way most of the time and trying to be a normal kid too.
It helped me have more compassion for her again. I've moved on to trying to be normal through all of this, and honestly have forgotten that she still feels bad, and hasn't necessarily just gotten used to the yucky feelings and can ignore them. At the same time, it really is confusing and a bit frustrating to know how to approach this information in the way of parenting. It's like, I still have to teach her that disrespectful or aggressive behavior is unacceptable in our house, yet, I need to try to get a larger measure of grace and more creative techniques for when she's high or low. I want her to cope, and feel like she's capable of making good choices. But, it's not as black and white as I'd like for it to be.
We'll be thinking on this one for a while....
Wednesday, February 18, 2009
5 Months and Counting
So, it's been 5 months since her Diagnosis (March 6th will be the date)! It feels like almost second-nature now, yet, was such an uphill battle for the first few months. I thought I'd share a little more about where we are and what day-to-day sometimes looks like. I hope it doesn't sound like complaints or redundancy, just a process.
As I've written before, the day-to-day details can be so overwhelming at first. I was afraid I seemed dramatic to people at times, that I was so concerned for her very life. I would hear, "Diabetes is manageable." Or, "I know someone with Diabetes...they're fine." Which was, well, the truth, yet not what I could talk about at the time. To say it's manageable sounded like it was easy to me. That may not have been the intention, but, it certainly isn't easy. There's never a day off, or a time you can just be lazy about it. Every morsel counts. When I have let her have a few extra carbs just because she wanted a little more and I didn't want to have to give her a shot, her blood-sugar has always been high later. So, it is not something that can be fooled around with or taken lightly.
To be clear, blood-sugar that is over 200 can begin to take it's toll on the body, attacking key organs, like the eyes and kidneys. A healthy child and adult tend to run between 70-120. A diabetic child should be between 80 and 180. The guessing game as to ratios (how much insulin per number of carbs for each meal), and figuring in whether she's exercising enough for her current blood-sugar, or too much, or should have a snack for that level of activity, gets exhausting at times. Factoring in mood swings: Is this just normal 5-year-old dramatic behavior? Is this high or low blood-sugar behavior? Is this grieving over her situation or outside circumstances? Yeah those are fun questions to answer.
Another struggle is not feeling like we have much freedom to leave her with anyone. 3 small children is a large enough load on any given babysitter. We have let our favorite teen-sitter watch her for a couple of hours where no shots were needed. I also dropped her off at our co-op one day when I needed to take Norah to the Dr., and one of the mom's who's a nurse gave her the lunchtime shot and all went well. So that felt good. But, suffice it to say, it's not a quick learning-curve for any of us. The other day I had to leave Joe with all of the girls while I helped with a baby shower and was gone several hours. He had to feed them lunch, and take them to a birthday party and figure out carbs on cake cones and give appropriate shots. He's not afraid to do any of it and is more than happy, but had to call several times to make sure he had all of the correct assumptions and ratios. He was wonderful, and I was grateful for the morning away, but it solidified that even 4 months alongside this process, can still make him feel very uncertain about what's "right." So, it's hard to imagine in the near future having much time away. Before October 6th, we had planned on taking a trip for our 10-year anniversary this coming October, but for now are hoping to take a family trip instead.
Don't hear that as a complaint. I'm very happy to be taking care of Sophia and I have peace about her future. It's not a forever sentence that we won't go away alone. We're very content with a family vacation for our anniversary, it would be a true reward. Even that seemed impossible a few months ago. We couldn't imagine all of the eating out and the planning it would take. I hear life gets easier on a pump, which she should go on in another month. The pump automatically dispenses the insulin in very exact amounts, and the injection site is changed every few days, but she won't need daily shots (for the most part). I've watched a friend of ours on the pump, and you don't even notice when he's dispensing insulin, and he's of course been estimating carbs for most of his life, so it's much easier to guess. It is astonishing to see him guess so easily. We still have a long way to go to be where he is, but he's got about 20 years on us.
The other aspect that I've barely mentioned, which contributed to the "uphill battle", was the extreme angry behavior that she had. I couldn't even talk about it for a while, but in case this ever helps someone someday, I think I can now. She was traumatized by it all, I believe. For the first few weeks we treated her like she was sick, which in our house means lots of pampering and tv time, and no schedule, and "you're the special one." Then I suddenly realized I couldn't obsess over her every moment of the day and had to get back to "normal." I couldn't let the other girls think Sophia's needs always trump their's. We couldn't watch that much tv. And we needed to stop letting her think of herself as "sick." Now, she is definitely brave, and a superhero, but sick is not how I want her to view herself.
So, Momma turned off the tv, and put limits on our behavior and started holding her accountable again. (Oh that was the other thing, she was getting away with everything, because I thought maybe she couldn't help it all because of her blood sugars). Now there may be some truth to the fact that it is much harder to control anger and irrational behavior and feelings when your blood-sugar is rapidly changing. However, we had to teach her to cope, and to believe in her ability to "help it." Because, if I heard "I can't help it!!" one more time, I was going to have to quit my job. Just kidding.
All that to preface the fact that Sophie didn't react well to the changes for a couple of months. She started using physical force against me, and saying I hate you! (Which, I really didn't think I'd hear until she was at least 13!). She was suffice it to say, out of control for most of the day every day for a couple of months. It was depressing. I could barely talk about it. Most people with kids my age could not relate. Well, most 5 year-olds are not struggling with their behavior that much, so I understand. But, I felt so alone. Joe and I would just beat ourselves up every night trying to figure out what we were doing wrong.
A lot has changed since then, and I'm happy to say it is MUCH better. Some of it was definitely us. We were ready to put our family in counseling. It's not a bad thing to do (I mean come on, I am a counselor, I should be supportive of such a measure). But, I really didn't need one more appointment, expense, or thing to put Sophia through. I didn't want to have to explain to her that we needed to go yet another "doctor" to help her, because now we just couldn't handle her. Anyway, one night we watched a parenting help DVD and there was this one key line that said, "Good feelings don't bring about the good behavior, it's the good behavior that brings about the good feelings in kids." In other words, just making them talk about it in a counseling session isn't what was going to make her better. Helping her find solutions to her behavior and owning her decisions, and accepting limits would bring about happier feelings. All I can say is, my attitude changed, my approach changed, and she quickly responded to the limits, and her emotions improved.
Sound over-simplified? Maybe it is. Nothing is ever that simple. You know we were praying...a lot! Desperately seeking God's face and His will for Sophia and for our family. And I absolutely believe there was a battle there. She was a key player in the improvement. She prays. She asks Jesus to help her on her own. And I believe, with God's help, she's learning to not be a victim in life. We have some deep conversations for her age. She knows that she can't feel sorry for herself because she has diabetes. Now, sometimes she complains about the finger-pricks or shots hurting, and we let her. We acknowledge that it sucks. I would seriously be struggling with feeling much more sorry for myself than she does, I know. But, I quickly realized as we were walking this thing out that for one thing, the world doesn't understand diabetes and what it means. For another thing, they aren't going to treat you special just because you're different or you have this challenging disease. So, we've been helping her and ourselves change our attitudes. We can't be victims. We have to enjoy life.
Let me leave room to still complain in the future...I know I'm good at that, and we have to use our gifts. But, in the meantime, I'm going to try to control my attitude and help my family do the same. Feeling sorry for ourselves just doesn't work. There are too many people who need our help in this world.
The high notes: She's reading REALLY well (I can brag right?), and she's enjoying ballet and growing in her confidence and grace. She has friends that are 8!! Two exclamation points, because that makes her feel soooo cool. And she has 2 sisters who really enjoy and adore her now. Norah has a new name for her since Sophia's not so easy to say, it's "Go-Go." Sometimes I look at her and can't believe she's already 5, and other times I can't believe she's only five because of her immense maturity.
Jossie and Norah have a ton of fun stuff they're doing too, but I've written so much on this one, I think I'll call it good for now. I know some people have wanted an update. I actually started writing this about 3 weeks ago, but didn't have the free space to really think it through til tonight.
Life is fun.
Thursday, January 29, 2009
And They Lived Happily Every After
This story isn't actually about Joe and I, though we are doing our best to live "happily ever after." I just thought the pic went well with the title, and this is from Joe's birthday dinner recently.
I am older now, and when I was younger, I was a princess. But now that I am older, I am a queen. I remember once when I was a little princess I got a new pair of two dresses. And then I went to princess school in them. When I was playing at school, I wore it for a lot of days and for a while too. And then it got very, very dirty. And then one night it was ball night, and I awas going to dance with the prince. The prince really wanted me to dance with him. And then he saw the dress was very dirty and he said, " Are you the girl I wanted to marry?" And then me the princess said, "I'll go buy a new dress real, real quick." And then I got back and I got married at the dance and then we lived happily ever after.
Jossie's Story:
Once I was a princess. I loved to dance. And I lived in a home that was very small. And so one night I loved my Daddy and he was so handsome that I wanted to give him a big hug. And so one day he wanted to pick a flower for me. And so then I loved my mommy's shirt, it was so beautiful. And so my sister and I wanted to play ball catch. And so then my mommy got married. And then we lived happily ever after.
Dee End.
Monday, January 5, 2009
I scream "I'm Cheap!"
This brings me to oh-so-embarrassing today.
I was rushing out the door to take the girls to gymnastics. They are in back-to-back classes. (Which only matters, because I was there for so long). So, I grabbed my never-worn shades and cut the tag off of them and threw them up on my head. Got in the car and started driving, but since it was cloudy out, I never pulled them down over my eyes and forgot they were up there.
So, over two hours later, I get home and look in the mirror. I not only realize that I had left my shades on my head, but that I had also left the $5.99 sticker on the eye piece. So that's what you see when you see me and my sunglasses staring at you. I talked to several of the moms, and coaches, and receptionist. Did anyone mention my price tag? Nope!
So there. Now you know too. I'm cheap!
Thursday, January 1, 2009
Bleck!
I was sitting at the computer tonight and Norah wandered off. Joe asked where she was, and I facetiously said, "probably playing in the toilet." To which Sophie said, "I'll go look for her."
"Nope, not in the front bathroom."
"Look in the other one," says Mom.
Moment later: Sophie comes running back giggling, "Oh my gosh! She totally has her hands in the toilet and is putting her hands up to her mouth like this and is drinking the water out of it!"
Screaming in my head!!! Screaming in my head!!!
I of course bolt in there to discover her also giggling as she's scooping toilet water into her mouth.
The only thing that saves the complete grossness factor is that at least no potty was left in the potty, and Joe said, "Oh, I even double-flushed last time!"
Good. Now I feel so much better.
Saturday, December 20, 2008
Joe's Advent Words
Tuesday, December 16, 2008
Still Here
Christmas preparations have such a way of taking every bit of mental energy from us, yet it is not what is supposed to be for this season.
Trying desperately to maintain that appreciation and awe of a very special "Silent Night." And, not just worry about if we've bought the right gifts.
How to teach the kids the art of celebration and relaxing, as well as putting others first. Ahh...the pressures of a parent! :-)
More on life later. Much too tired tonight, but haven't completely forgotten the blog.
Sunday, November 23, 2008
Not to jump the gun, as they say...
We've had some cute moments this weekend.
We went to a square dance last night. It was in a barn in the country. And when we got out of our car, Sophia looked up at the sky and said, "What are all of those flashing lights? Are they all planes, or something?" I laughed. "No, Honey, those are called stars." City folks we are, I guess. Of course it's not like we're outside during the nightime much with them. She had a great time at the dance. And even started to do better about responding to adults who talk to her, without just looking away.
Jossie had a great time at the dance too; couldn't stop dancing and twirling all the way to the car. Jossie also bonked her head a dozen times at least this weekend. That isn't actually news, just one of those funny facts about her. She can't walk through a doorway without hitting one side of it, or running into the doorknob. She can't watch a movie without walking on the couch or wiggling and eventually falling off of her chair. This morning we were all loudly singing Christmas carols, and she hushed us all so we could hear her song that she was making up, "Quiet! I want you to hear my song!" "Holy Spirit," (Sang very loudly and emphatically, then takes a very deep breath...very serious face here too) "In the Manger!" "Ok, that's all. I'm going to go sing it for Daddy in the shower now."
The other day, I was needing a snuggle moment, so I was laying on her floor, and I pulled her to me and we were both staring at the clouds painted on the ceiling. I said with deep meaning in my voice and heart, "Sometime, Mommy wants to go lay on a grassy hill and look at real clouds with you. Just you and me." (Expecting a meaningful reply here...) "OK Mommy. Can I go now?" She's a stitch.
Norah has been so sweet and fun too. She's starting to enjoy cleaning up her messes. She likes to get a sticker on her hand for helping to pick up her toys. She also really wants to be included in anything her big sissies do. She loves to hold babies, which she's good at calling "Baby." And she even is trying to figure out this "lotion world" thing that Jossie does. She has been giving a lot of real kisses too. She has an Elmo book that asks for a kiss at the end, and she gets the biggest smile and kisses him several times. I love it.
Well, I just wanted to share a few sweeter moments from this weekend.
We've had some very sweet prayers, comments, and support from friends and loved ones. Thank you as always!
Wednesday, November 19, 2008
Refiner's Fire
On the one hand, Diabetes is getting easier to manage. Sophia's blood-sugars have been in a decent range. She's occasionally low, and very rarely over 200. That's the really good news, and answered prayers that her body is responding as it should.
Going places, like her Wednesday co-op school has gotten less stressful. I feel OK about her missing the classroom snack, or giving her a shot to eat it. The first day back, I choked back tears, because I felt it just wasn't fair. But, she likes the attention the shot gives her, and so it's worth it to get one for a snack, it seems. Plus, who wants 12 goldfish crackers, when you could have a blueberry muffin like everyone else? She's getting some affirmation from the parents and peers there too, so that helps.
On the flip side, her behavior has been off-the-charts bad. I won't go into details, because I don't want to embarrass her or uncover her (not that she's reading this, but in principle). She's still an amazing soul, but I feel she's in the anger stage of grief, and is a bit stuck. It's been a little depressing, thus the writer's block. It's something I thought was just blood-sugar related (and it can be at times), but it's also just sheer anger, and her need to control. I don't even want to write about this, because I earnestly desire to be back to happy days, and funny stories.
It makes me realize how judgmental I was. Here I am, a trained counselor, and yet somehow, I held on to this belief that the kids who acted naughty were not given enough direction, love, discipline, etc. at home. I also believed that I would have kids, and I would love them, and guide them, and they would act REALLY good all of the time (or at least always in public, and usually at home). A visiting pastor recently said , "It's amazing how you can have zero kids and 5 theories on how to raise them right, and then you have 5 kids and you have zero theories!" I laughed. Yep! That's me! What's worse, is you can be a supposed counselor and think you have a lot of tricks in the bag......sigh. I also, thankfully, have this sweet friend who had two very well-behaved kiddos, and said she used to think "Look what I've done. I've made them this way." (totally paraphrasing), and then she had her third, who is very strong-willed and realized, "Oh! They just come out this way."
We can only beat ourselves up so much, bottom line. We pray. And then we pray some more. Then, when we are totally worn out and confused, we, well, we pray some more. And that's not to sound religious at all, we just truly can't lean on our own understanding. We cannot figure this stuff out alone. We're learning some ways to get better at communicating with our kids. We're learning things that seem so basic, like, we should be more affectionate (Joe and I) in front of the kids. That may seem silly or like a No-Duh!, but we honestly were every evening in this rut of just surviving until their bedtime, and then we can have quality time and relax. But, we were reminded by a friend married for over 50 years, that our children's security and understanding of healthy marriage is by what they're observing now.
We're trying to teach Sophie how to pray too. She's starting to understand that Jesus can help her. She's not alone in conquering these angry feelings. I never thought I'd be teaching my 5 year-old about how she chooses her thoughts, behaviors, consequences. But, also, how much I'd be teaching her about the spiritual side, like how to take control with the Lord's help. We're not alone in these battles, and the sooner she recognizes that, the better. Phew! It's a lot to swallow though!!
And don't let me fool you into thinking we haven't made some poor choices, or downright embarrassed ourselves at times...we have. Joe and I too, have our temper tantrums and look ridiculous in public at times. Humility....we're getting some. And we've been able to model to our kids how to own-up and accept responsibility for our choices. Good times!
Refiner's Fire! We're in it! Thank God we're considered worthy of refining. So much to learn still, but hoping to come out looking like gold, or at least a nice shiny penny!