Friday, June 12, 2009

Going Well.

I am quite exhausted, so blogging hasn't been a high priority, but overall, the pump process is going quite well.

We had to switch infusion sets, which is the needle or canula that stays in her fat layer on her bottom. The needle version was waking her up at night and leaving big bruises from where she'd hit it hard when rolling over on it. The nurse tried to tell me that it was psychological, and referred to her as "the princess and the pea." Whatever. I say, until we walk a mile in her shoes, we can't really say, but that's just me. Anyway, we switched to a softer canula tube and she hasn't complained since.

The pump has really done a great job at keeping her blood sugar in "normal" range. I put it in quotes because it is still nothing like our normal, but it is under 200 most of the time, and I can tell she feels better. Her behavior is so much better. It makes me tear-up when I think about how different she is the last 2 weeks. She is calm and reasonable, and sweet. It's really precious and it makes me wish she'd gone on the pump sooner. But, there's no use in looking back.

I'm exhausted because I still have to set an alarm every night at 2 am to check her and make sure she's not crashing. We've only had to wake her up once to force some carbs in her, and she really didn't like that. She doesn't wake up well, so it took a long time of her being angry and screaming before she realized she had to ingest something. The next morning she didn't even remember it.

She has had more "lows" on the pump. This is where her blood-sugar dips below 70 and she has to get some carbs. It seems to happen when playing or exercising, and we just haven't mastered the art of properly carbing beforehand. One day she didn't quite finish her cupcake and we got distracted. I left for the store, and Joe was busy working on the yard. She was watching a movie with Mamaw (and this is often a distracting time for her to not realize something's going wrong). She finally started panicking and running around calling for Joe. When he tested her, she was 34! She was starting to pass-out when he came back in the room with juice. Luckily he got her to wake up enough to drink it. It freaked me out though. Mom called me to come home, and everything was fine by the time I got there. But, it was a yucky reminder of the seriousness of diabetes and the fact that things can go wrong fast.

It's those moments that have me wondering if I'll ever be able to fully relax about it and trust myself with the disease. The fact that kids play hard and are constantly growing adds so much to the factors that can throw things off. Maybe when she's an adult it will seem more predictable.

She still complains of her tummy hurting most days. We can't see the GI doctor until September, so we just have to wait until then to see if it's celiac or something else, or hopefully nothing at all.

Well, off to least for 2 hours. Woo-hoo! Nothing like nap-sleeping.


Geidlbots said...

I missed you at church yesterday. I didn't get over to you quickly enough. I wanted to give you a hug and say goodbye properly. I am going to miss you, and I will definitely keep up with you via Facebook and the blog. Take care, and we will come back to visit!